The 2018 Lymphoma Coalition (LC) Report Card on Lymphomas highlights how different factors affect patients based on where they are in their patient experience. Despite the existence of well-defined care pathways and referral processes, patient’s experiences are rarely linear and always unique, which allows space for gaps in support. Through gaining a better understanding of the challenges and issues that patients’ face during each phase of their care, LC hopes to bring awareness to and aid in bridging these gaps. These challenges and issues take the form of physical and medical side-effects, psychosocial issues, communication challenges with healthcare professionals (HCPs), information provision and barriers to timely and effective treatment.
The patient experience was divided into and analysed according to the following six stages:
- Newly diagnosed
- Watch and wait
- First line treatment
- Maintenance therapy
This report identifies issues and challenges in each stage of the patient experience, key issues that are consistent throughout the entire patient experience, and determines areas where patients require additional information and support.